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Hope For Henry
You have just met someone with Duchenne Muscular Dystrophy. Thanks for your interest and curiosity about me!
I live in Phoenix, AZ
Hello, hi, hey...
Welcome
DMD is a progressive muscle disorder that impacts 1/2,500 boys worldwide. To date there is no cure.
What We're doing
My Aunt Sarah
My aunt Sarah and her fam in 2023 has pledged to match donations up to $25,000 for the Hope for Henry Team. Sarah is running 3 half marathons this year! Whew...thats a lot of running!
Advocacy
My parents, Maggie and Jeremy, are amazing advocates who have received training from Parent Project. Since my diagnosis in 2021, Mom has been a strong voice for me, virtually addressing the Arizona Congress and Senate every March. They both plan on visiting Washington DC in 2024 to continue their advocacy work in person. They're pretty awesome!